dc.contributor.author
Klingler, Corinna
dc.contributor.author
Jagwitz-Biegnitz, Magdaléna von
dc.contributor.author
Baber, Ronny
dc.contributor.author
Becker, Karl-Friedrich
dc.contributor.author
Dahl, Edgar
dc.contributor.author
Eibner, Cornelius
dc.contributor.author
Fuchs, Jörg
dc.contributor.author
Groenewold, Maike K.
dc.contributor.author
Hartung, Mara Lena
dc.contributor.author
Hummel, Michael
dc.contributor.author
Jahns, Roland
dc.contributor.author
Kirsten, Romy
dc.contributor.author
Kopfnagel, Verena
dc.contributor.author
Maushagen, Regina
dc.contributor.author
Nussbeck, Sara Yasemin
dc.contributor.author
Schoneberg, Anne
dc.contributor.author
Winter, Theresa
dc.contributor.author
Specht, Cornelia
dc.date.accessioned
2023-08-01T11:46:51Z
dc.date.available
2023-08-01T11:46:51Z
dc.identifier.uri
https://refubium.fu-berlin.de/handle/fub188/40300
dc.identifier.uri
http://dx.doi.org/10.17169/refubium-40021
dc.description.abstract
Biobanks are important infrastructures facilitating biomedical research. After a decade of rolling out such infrastructures, a shift in attention to the sustainability of biobanks could be observed in recent years. In this regard, an increase in the as yet relatively low utilisation rates of biobanks has been formulated as a goal. Higher utilisation rates can only be achieved if the perspectives of potential users of biobanks-particularly researchers not yet collaborating with biobanks-are adequately considered. To better understand their perspectives, a survey was conducted at ten different research institutions in Germany hosting a centralised biobank. The survey targeted potential users of biobank services, i.e. researchers working with biosamples. It addressed the general demand for biosamples, strategies for biosample acquisition/storage and reasons for/against collaborating with biobanks. In total, 354 researchers filled out the survey. Most interestingly, only a minority of researchers (12%) acquired their biosamples via biobanks. Of the respondents not collaborating with biobanks on sample acquisition, around half were not aware of the (services of the) respective local biobank. Those who actively decided against acquiring biosamples via a biobank provided different reasons. Most commonly, respondents stated that the biosamples required were not available, the costs were too high and information about the available biosamples was not readily accessible. Biobanks can draw many lessons from the results of the survey. Particularly, external communication and outreach should be improved. Additionally, biobanks might have to reassess whether their particular collection strategies are adequately aligned with local researchers' needs.
en
dc.rights.uri
https://creativecommons.org/licenses/by/4.0/
dc.subject
Stakeholder engagement
en
dc.subject
biobank services
en
dc.subject.ddc
600 Technik, Medizin, angewandte Wissenschaften::610 Medizin und Gesundheit::610 Medizin und Gesundheit
dc.title
Stakeholder engagement to ensure the sustainability of biobanks: a survey of potential users of biobank services
dc.type
Wissenschaftlicher Artikel
dcterms.bibliographicCitation.doi
10.1038/s41431-021-00905-x
dcterms.bibliographicCitation.journaltitle
European Journal of Human Genetics
dcterms.bibliographicCitation.number
12
dcterms.bibliographicCitation.originalpublishername
Springer Nature
dcterms.bibliographicCitation.pagestart
1344
dcterms.bibliographicCitation.pageend
1354
dcterms.bibliographicCitation.volume
30
refubium.affiliation
Charité - Universitätsmedizin Berlin
refubium.funding
Springer Nature DEAL
refubium.resourceType.isindependentpub
no
dcterms.accessRights.openaire
open access
dcterms.bibliographicCitation.pmid
34031552
dcterms.isPartOf.issn
1018-4813
dcterms.isPartOf.eissn
1476-5438