dc.contributor.author
Pruefe, Jenny
dc.contributor.author
Dierks, Marie-Luise
dc.contributor.author
Bethe, Dirk
dc.contributor.author
Oldhafer, Martina
dc.contributor.author
Muether, Silvia
dc.contributor.author
Thumfart, Julia
dc.contributor.author
Feldkoetter, Markus [u.a.]
dc.date.accessioned
2018-06-08T11:07:36Z
dc.date.available
2017-09-28T11:06:57.109Z
dc.identifier.uri
https://refubium.fu-berlin.de/handle/fub188/21665
dc.identifier.uri
http://dx.doi.org/10.17169/refubium-24953
dc.description.abstract
Objectives: It is known that transition, as a shift of care, marks a
vulnerable phase in the adolescents’ lives with an increased risk for non-
adherence and allograft failure. Still, the transition process of adolescents
and young adults living with a kidney transplant in Germany is not well
defined. The present research aims to assess transition-relevant structures
for this group of young people. Special attention is paid to the timing of the
process. Setting: In an observational study, we visited 21 departments of
paediatric nephrology in Germany. Participants were doctors (n=19), nurses
(n=14) and psychosocial staff (n=16) who were responsible for transition in
the relevant centres. Structural elements were surveyed using a short
questionnaire. The experiential viewpoint was collected by interviews which
were transcribedverbatim before thematic analysis was performed. Results: This
study highlights that professionals working within paediatric nephrology in
Germany are well aware of the importance of successful transition. Key
elements of transitional care are well understood and mutually agreed on.
Nonetheless, implementation within daily routine seems challenging, and the
absence of written, structured procedures may hamper successful transition.
Conclusions: While professionals aim for an individual timing of transfer
based on medical, social, emotional and structural aspects, rigid regulations
on transfer age as given by the relevant health authorities add on to the
challenge. Trial registration number: ISRCTN Registry no 22988897; results
(phase I) and pre-results (phase II).
de
dc.rights.uri
http://creativecommons.org/licenses/by-nc/4.0/
dc.subject.ddc
600 Technik, Medizin, angewandte Wissenschaften::610 Medizin und Gesundheit
dc.title
Transition structures and timing of transfer from paediatric to adult-based
care after kidney transplantation in Germany
dc.type
Wissenschaftlicher Artikel
dcterms.bibliographicCitation
BMJ Open. - 7 (2017), 6, Artikel Nr. e015593
dc.title.subtitle
a qualitative study
dcterms.bibliographicCitation.doi
10.1136/bmjopen-2016-015593
dcterms.bibliographicCitation.url
http://dx.doi.org/10.1136/bmjopen-2016-015593
refubium.affiliation
Charité - Universitätsmedizin Berlin
de
refubium.mycore.fudocsId
FUDOCS_document_000000028051
refubium.note.author
Der Artikel wurde in einer reinen Open-Access-Zeitschrift publiziert.
refubium.resourceType.isindependentpub
no
refubium.mycore.derivateId
FUDOCS_derivate_000000008808
dcterms.accessRights.openaire
open access