dc.contributor.author
Zyumbileva, Petya
dc.contributor.author
Uebe, Maria
dc.contributor.author
Rudolph, Stefanie
dc.contributor.author
von Kalle, Christof
dc.date.accessioned
2024-10-28T15:34:22Z
dc.date.available
2024-10-28T15:34:22Z
dc.identifier.uri
https://refubium.fu-berlin.de/handle/fub188/45416
dc.identifier.uri
http://dx.doi.org/10.17169/refubium-45128
dc.description.abstract
Background: The coronavirus disease 2019 (COVID-19) pandemic has underscored the importance of real world data in everyday clinical practice and has highlighted some long-standing problems of our healthcare system such as gaps in primary data collection, hurdles in the evaluation of patient data, and complexity regarding the data exchange between different institutions. In addition, changes in physician-patient relationships such as transitions from a paternalistic to a partnership-based relationship model as well as increasing digitalization have shaped our modern understanding of healthcare, emphasizing the issue of patient autonomy and self-efficacy and highlighting the need for innovative, patient-centered approaches.
Methods: Using the patient journey as a theoretical construct, we describe the collection of different types of real world data, their meaning and handling.
Conclusion: Mapping the patient journey process combined with a widely used data standard can lead to the acquisition of primary data in the healthcare sector which can be used by all medical treatment institutions. This will lead to an exchange of valuable data between institutions and circuit the current problem of proprietary formats. Furthermore, the evaluation of patient-reported outcomes as a standard in the clinical routine could enhance patients' autonomy and optimize treatment. Thus, the overall treatment effectiveness and survival of patients can be improved by creating a common data language and using a holistic, human-centered care approach through integrating perspectives of patients and their loved ones.
en
dc.rights.uri
https://creativecommons.org/licenses/by/4.0/
dc.subject
Patient journey
en
dc.subject
Patient-reported outcomes
en
dc.subject
Data standard
en
dc.subject
Common language
en
dc.subject
Data exchange
en
dc.subject.ddc
600 Technik, Medizin, angewandte Wissenschaften::610 Medizin und Gesundheit::610 Medizin und Gesundheit
dc.title
Den Patienten wirklich verstehen lernen: Real-world-Evidenz aus der „patient journey“
dc.type
Wissenschaftlicher Artikel
dcterms.bibliographicCitation.doi
10.1007/s11553-022-00984-8
dcterms.bibliographicCitation.journaltitle
Prävention und Gesundheitsförderung
dcterms.bibliographicCitation.originalpublishername
Springer Nature
refubium.affiliation
Charité - Universitätsmedizin Berlin
refubium.funding
Springer Nature DEAL
refubium.resourceType.isindependentpub
no
dcterms.accessRights.openaire
open access
dcterms.isPartOf.issn
1861-6755
dcterms.isPartOf.eissn
1861-6763