dc.contributor.author
Ferentzi, Hannah
dc.contributor.author
Rippe, Ralph C. A.
dc.contributor.author
Latour, Jos M.
dc.contributor.author
Schubert, Stephan
dc.contributor.author
Girch, Alona
dc.contributor.author
Jönebratt Stocker, Michaela
dc.contributor.author
Pfitzer, Constanze
dc.contributor.author
Photiadis, Joachim
dc.contributor.author
Sandica, Eugen
dc.contributor.author
Berger, Felix
dc.contributor.author
Schmitt, Katharina R. L.
dc.date.accessioned
2021-10-28T09:31:14Z
dc.date.available
2021-10-28T09:31:14Z
dc.identifier.uri
https://refubium.fu-berlin.de/handle/fub188/32419
dc.identifier.uri
http://dx.doi.org/10.17169/refubium-32143
dc.description.abstract
Rationale and Aim: Infants with Congenital Heart Disease (CHD) are at risk for neurodevelopmental delays, emotional, social and behavioral difficulties. Hospitalization early in life and associated stressors may contribute to these challenges. Family-centered Care (FCC) is a health care approach that is respectful of and responsive to the needs and values of a family and has shown to be effective in improving health outcomes of premature infants, as well as the mental well-being of their parents. However, there is limited empirical data available on FCC practices in pediatric cardiology and associations with parent and infant outcomes.
Methods and Analysis: In this cross-sectional study, we will explore FCC practices at two pediatric cardiac intensive care units in Germany, assess parent satisfaction with FCC, and investigate associations with parental mental well-being and parenting stress, as well as infant physical and mental well-being. We will collect data of 280 infants with CHD and their families. Data will be analyzed using multivariate statistics and multilevel modeling.
Implications and Dissemination: The study protocol was approved by the medical ethics committees of both partner sites and registered with the German registry for clinical trials (NR DRKS00023964). This study serves as a first step to investigate FCC practices in a pediatric cardiology setting, providing insight into the relationship between FCC and parent and infant outcomes in a population of infants with CHD. Results will be disseminated in peer-reviewed journals.
en
dc.rights.uri
https://creativecommons.org/licenses/by/4.0/
dc.subject
intensive care unit
en
dc.subject
parental mental well-being
en
dc.subject
infant physical well-being
en
dc.subject
congenital heart disease
en
dc.subject
infant mental well-being
en
dc.subject
family-centered care
en
dc.subject
pediatric cardiology
en
dc.subject.ddc
600 Technik, Medizin, angewandte Wissenschaften::610 Medizin und Gesundheit::610 Medizin und Gesundheit
dc.title
Family-Centered Care at Pediatric Cardiac Intensive Care Units in Germany and the Relationship With Parent and Infant Well-Being: A Study Protocol
dc.type
Wissenschaftlicher Artikel
dcterms.bibliographicCitation.articlenumber
666904
dcterms.bibliographicCitation.doi
10.3389/fped.2021.666904
dcterms.bibliographicCitation.journaltitle
Frontiers in Pediatrics
dcterms.bibliographicCitation.originalpublishername
Frontiers Media SA
dcterms.bibliographicCitation.volume
9
refubium.affiliation
Charité - Universitätsmedizin Berlin
refubium.resourceType.isindependentpub
no
dcterms.accessRights.openaire
open access
dcterms.bibliographicCitation.pmid
34458208
dcterms.isPartOf.eissn
2296-2360