dc.contributor.author
Frick, Johann
dc.contributor.author
Schindel, Daniel
dc.contributor.author
Gebert, Pimrapat
dc.contributor.author
Grittner, Ulrike
dc.contributor.author
Schenk, Liane
dc.date.accessioned
2020-01-02T12:00:16Z
dc.date.available
2020-01-02T12:00:16Z
dc.identifier.uri
https://refubium.fu-berlin.de/handle/fub188/26304
dc.identifier.uri
http://dx.doi.org/10.17169/refubium-26063
dc.description.abstract
BACKGROUND:
Cancer patients experience psychological and social distress due to their medical treatment and social issues. However, continuous and specialized social support is still lacking. In Germany, a group of company health insurance funds has developed an approach to support cancer patients with monthly structured interviews conducted by specially trained Social Care Nurses. The nurses will identify patient needs in order to provide help with medical, personal, and social matters. One aim of the scientific evaluation is to analyze the effect of the consultations on various patient-reported outcomes, especially quality of life. The evaluation concept will be described in this study protocol.
METHODS/DESIGN:
The evaluation is a non-randomized, controlled, multi-center intervention study with a mixed-method design. It consists of three research modules which include primary data from questionnaires, and claims data from the health insurance funds. In Module 1, cancer patients will be recruited to form an intervention group (OSCAR, n = 150) and a control group (n = 200) in four study centers for a period of 1 year. One baseline and three follow-up questionnaires will be conducted to survey the patient-reported outcomes. Relevant secondary outcomes are health literacy, participation, and physician-patient communication. In Module 2, claims data will be used to analyze cost effects and thereby assess effectivity and hospitalization. Module 3 will involve a qualitative analysis of project diaries kept by the Social Care Nurses. The diaries will record the nurses' practical experiences and the benefits of deploying OSCAR across the German healthcare system.
DISCUSSION:
OSCAR is an innovative way of providing cancer patients with continuous support to improve their quality of life. The evaluation concept aims to assess the effects of the monthly consultations by the Social Care Nurses on the patients, and will use a mixed-method design. The results are important for assessing the transferability of OSCAR to the healthcare system as a whole.
TRIAL REGISTRATION:
German Clinical Trials Register (DRKS-ID: DRKS00013640 ). Registered 29 December 2017.
en
dc.rights.uri
https://creativecommons.org/licenses/by/4.0/
dc.subject
Health literacy
en
dc.subject
Patient preferences
en
dc.subject
Quality of life
en
dc.subject
Social support
en
dc.subject.ddc
600 Technik, Medizin, angewandte Wissenschaften::610 Medizin und Gesundheit::610 Medizin und Gesundheit
dc.title
Improving quality of life in cancer patients through higher participation and health literacy: study protocol for evaluating the oncological social care project (OSCAR)
dc.type
Wissenschaftlicher Artikel
dcterms.bibliographicCitation.articlenumber
754
dcterms.bibliographicCitation.doi
10.1186/s12913-019-4585-0
dcterms.bibliographicCitation.journaltitle
BMC Health Services Research
dcterms.bibliographicCitation.number
1
dcterms.bibliographicCitation.originalpublishername
BMC
dcterms.bibliographicCitation.volume
19
refubium.affiliation
Charité - Universitätsmedizin Berlin
refubium.resourceType.isindependentpub
no
dcterms.accessRights.openaire
open access
dcterms.bibliographicCitation.pmid
31655598
dcterms.isPartOf.eissn
1472-6963